CODE TO CURE
KCNH5 Epilepsy Foundation

Decoding the Mutation. Accelerating the Science. Finding the Cure.

Welcome

We refuse to wait for a cure.Code to Cure was born out of a family's determination to accelerate life-saving medicine for the KCNH5 patient community. As a 501(c)(3) public charity in-formation, our core mission is to fund and accelerate research to find a cure for KCNH5-related genetic epilepsy. Along the way, we are proud to connect families and advocates to amplify our impact.Scroll down to discover how we are partnering to rewrite the future of genetic epilepsy.

Empowering Science to Engineer a Cure

KCNH5 mutation-related epilepsy is a rare, severe neurological disorder that causes early-onset seizures and developmental delays.Code to Cure bridges the gap between laboratory data and patient care by raising capital to fund targeted, translation-ready genetics research, including:- Antisense Oligonucleotide (ASO) therapeutics
- CRISPR-based gene-correction models
Your support directly funds the precise scientific breakthroughs necessary to rewrite the genetic code, silence the root cause of these seizures, and make life-altering therapies available to children waiting for a cure.

Our Story

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Get in Touch

Are you a KCNH5 family looking for community? A researcher seeking to pitch a collaborative pipeline? Or a donor ready to back the science? We want to hear from you.📧 [email protected]

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© 2026 Code to Cure KCNH5 Epilepsy Foundation. All Rights Reserved. Based in Florida, USA.

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